More on Caleb
I don't know when or if they will receive some kind of definititive diagnosis about Caleb's condition. I have the latest news for you, this from Caleb's paternal grandparents.
Caleb has been at Children’s Hospital of Los Angeles (CHLA) since Saturday, November 27th. Thankfully, Marcus and Julia have been blessed to be able to stay nearby at the Ronald McDonald House, allowing them to take turns watching Caleb day and night. They have also been blessed to have a few very special friends and family members stay with Caleb when they needed to catch up on their sleep.
Since his arrival at CHLA, Caleb has surprised doctors and visitors by how healthy he looks. But as they say, things aren't always what they appear. So doctors quickly began running tests on Caleb which were not available in Shanghai. They have been trying to find out why his glucose levels were so low in the first place as well as trying to determine what long-term side-effects, if any, the low glucose levels have had on Caleb’s overall health. Shortly after he arrived at CHLA the doctors discontinued giving Caleb glucose. Thankfully, he was able to maintain "low to normal" levels of glucose on his own. While this was very encouraging, Marcus and Julia soon noticed that Caleb was becoming very lethargic and unresponsive. They convinced doctors to put him back on a glucose IV which promptly re-energized Caleb. This led doctors to run additional tests.
This past week has been very difficult for Marcus and Julia. They received results from two important tests that were especially disturbing. One revealed that Caleb may have what is called a Glucose Transfer Disorder. This means that although his glucose levels appear “near normal” from his hands to his feet, for some (still unknown) reason, his little body is failing to transport (send) normal levels of glucose to his brain. This may explain why he was so lethargic even when his body appeared to have a normal levels of glucose.
Understandably, Marcus and Julia are very concerned about any possible long-term side-effects of this disorder. They are also anxiously awaiting the results of several genetics tests which they hope and pray will shed light on the source of Caleb’s very serious health issues. Unfortunately, the results of these tests won’t become available until after Christmas. In the meantime, they must patiently and prayerfully keep watch and wait. As you can imagine, it is a physically, emotionally and spiritually exhausting task for which they covet your prayers. Please join us in praying for Marcus, Julia and Caleb.
Pray that Marcus and Julia will continue to trust in the unfailing love, compassion and mercy of the Father of our Lord and Savior Jesus.
Pray that in the next several days, Marcus and Julia receive some long-overdue good news concerning Caleb's condition.
>Pray that the Lord miraculously heals Caleb's Glucose Transfer Disorder, bringing glory and honor to himself.
>Pray that the long-term effects of this disorder do not inhibit Caleb from being a faithful servant of his Lord Jesus Christ in anyway.
>Pray that as a result of this painful trial, our entire family to grow stronger, more united and faithful to our Savior Jesus.
>Pray for God's will to be done in all things related to Caleb's health and overall well being.
For more information and photos, please visit the CaringBridge.com site and check out Marcus' Facebook page.
Thank you very much for your concern and faithfulness.
Daniel and Jeanette Rodriguez
Caleb has been at Children’s Hospital of Los Angeles (CHLA) since Saturday, November 27th. Thankfully, Marcus and Julia have been blessed to be able to stay nearby at the Ronald McDonald House, allowing them to take turns watching Caleb day and night. They have also been blessed to have a few very special friends and family members stay with Caleb when they needed to catch up on their sleep.
Since his arrival at CHLA, Caleb has surprised doctors and visitors by how healthy he looks. But as they say, things aren't always what they appear. So doctors quickly began running tests on Caleb which were not available in Shanghai. They have been trying to find out why his glucose levels were so low in the first place as well as trying to determine what long-term side-effects, if any, the low glucose levels have had on Caleb’s overall health. Shortly after he arrived at CHLA the doctors discontinued giving Caleb glucose. Thankfully, he was able to maintain "low to normal" levels of glucose on his own. While this was very encouraging, Marcus and Julia soon noticed that Caleb was becoming very lethargic and unresponsive. They convinced doctors to put him back on a glucose IV which promptly re-energized Caleb. This led doctors to run additional tests.
This past week has been very difficult for Marcus and Julia. They received results from two important tests that were especially disturbing. One revealed that Caleb may have what is called a Glucose Transfer Disorder. This means that although his glucose levels appear “near normal” from his hands to his feet, for some (still unknown) reason, his little body is failing to transport (send) normal levels of glucose to his brain. This may explain why he was so lethargic even when his body appeared to have a normal levels of glucose.
Understandably, Marcus and Julia are very concerned about any possible long-term side-effects of this disorder. They are also anxiously awaiting the results of several genetics tests which they hope and pray will shed light on the source of Caleb’s very serious health issues. Unfortunately, the results of these tests won’t become available until after Christmas. In the meantime, they must patiently and prayerfully keep watch and wait. As you can imagine, it is a physically, emotionally and spiritually exhausting task for which they covet your prayers. Please join us in praying for Marcus, Julia and Caleb.
Pray that Marcus and Julia will continue to trust in the unfailing love, compassion and mercy of the Father of our Lord and Savior Jesus.
Pray that in the next several days, Marcus and Julia receive some long-overdue good news concerning Caleb's condition.
>Pray that the Lord miraculously heals Caleb's Glucose Transfer Disorder, bringing glory and honor to himself.
>Pray that the long-term effects of this disorder do not inhibit Caleb from being a faithful servant of his Lord Jesus Christ in anyway.
>Pray that as a result of this painful trial, our entire family to grow stronger, more united and faithful to our Savior Jesus.
>Pray for God's will to be done in all things related to Caleb's health and overall well being.
For more information and photos, please visit the CaringBridge.com site and check out Marcus' Facebook page.
Thank you very much for your concern and faithfulness.
Daniel and Jeanette Rodriguez
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